On Second Thought

I was talking to Angie last night.  It seems that the doctor was not the best person to be giving information about Haley.  She said everything was matter of fact, with no real concern.  Here is a doctor giving a health update that might include death and it's like they are telling her that it's nothing, really.  Once the blood work comes in, she is going to seek another doctors opinion.  Is there anything we can do?  Which type of the 40 Leukodystophies is it?  What is the life expectancy?  She seems like she is improving every day with us.